Little Old Lady … in Waiting

Tag: good death

  • In Conversation with Margo Beckwith-Byrne

    At the grand dame age of 65, Margo Beckwith-Byrne self-identifies as a ‘little old lady’ proper, although her trim, athletic figure and sporty lifestyle are characteristic of a much younger woman. An avid tennis and pickleball player, Margo is a spitfire that punches well above her fighting weight in any given scenario. She is confidant and decisive, and a natural born manager of men. On the personality tests that assign an animal archetype I’d guess Margo is more at home in the shark tank than the petting zoo. She is spirited, and salty, and strong…she’s had to be strong. Widowed at 42 when her husband went out for a swim on a family vacation and never came back in, she became a single working mom overnight, her kids were then 2,5 and 7.

    Equipped with a B.Ed. in Home Economics, Margo taught for two years in Labrador City before transferring her skills to work more in keeping with her natural aptitudes and temperament. She became a boss.  With the mind of an engineer, and an innate understanding of process and efficiency, Margo started her career in business, first at the Saint John General Hospital, where she very quickly assumed a supervisor role, and later in HR, first at Fundy Cable and later at Labatt Breweries, as an HR Manager.  Her last job was as Senior Vice President at Wyndham.  She was downsized at 54, which today she describes as a gift, one she did not recognize at the time.  An astute businesswoman and investor, Margo never worked another day, and is a poster girl for how to retire well.

    About a year ago, Margo visited the ER with what she describes as stomach discomfort and was eventually diagnosed with stage 4 colorectal cancer. Since then, she has undergone surgery, and chemotherapy which she says is “the most miserable thing you could ever do.’ Margo tells me she is lucky because the cancer she has, MSI-H, is rare and responsive to her current immunotherapy. Her cancer-versary is July 31st.  She shares that the hashtag for colorectal cancer is ‘KFG…Keep fucking going.’  

    Margo speaks with the clear-cut, resolute voice of a woman who has found her truth, and in the process of documenting her wisdom, I caught myself re-evaluating a little of my own inner engineering. I am grateful for what she shared with me on a sunny afternoon, at her beautiful home that overlooks the sea.

    Tell me your life story in seven sentences or less? 

    I was born a Saint Johner and I grew up wanting to leave.  I had children, and then I wanted to come back.  I went to school first at St. FX and then finished at UNB Fredericton … I really liked sewing, I liked making clothes, I didn’t like cooking so much, but I ended up with a B.Ed. in Home Economics and after that I knew very quickly that I didn’t want to teach.  What was important to me at a young age was financial stability and so I spent the rest of my life trying to achieve that. There were lots of twists and turns but ultimately, I spent my whole life believing that happiness and contentment lay in things outside of me, and now I realize I was wrong.  Not everybody is afforded the knowledge that it’s not the external circumstances but rather the internal…because maybe they don’t achieve as many of their material goals, and I was very lucky to acquire mine, only to find out it doesn’t work. Some people still think it’s that car they’re saving for that will bring you happiness… I know it’s not that. 

    What is the best thing about getting older?

    I know it’s cliché, but it’s not giving a fuck about the good opinion of others. Hands down… the best.  Fuck you all!

    What is the worst thing about getting older?

    Your body breaking down. Not being able to physically do the things that you used to be able to do.

    If you could retain or retrieve one quality from your youth, what would it be?

    Let me flesh it out this way. I wish when I was young, I had had a better sense for how good I really looked.  I spent a lot of time in my youth wrecking vacations, get-togethers, events, thinking about my weight. I resent that time now. The focus growing up in my house and with friends was often about, ‘Are you fat or are you skinny.’  And the thing is, when I look back at my life, I was never fat, but it’s all relative.  Your appearance was more important than any kind of achievement.  I still have high school friends who’ll ask, ‘is she fat or skinny’. I was like 125 poinds and I would be obsessed with my weight.   Recently when I had to weigh in for chemo, the nurse said, ‘that’s great you haven’t lost any weight,’ and my natural thought is well fuck, and I’ve been exercising my ass off.  I guess I’m answering the question in reverse, but I’d like to go back and tell my younger self that no matter what you weigh or how you look, you’re still beautiful. They say youth is wasted on the young.

    But what do I wish I could retain, to answer your original question, my memory… I wish I didn’t have to write everything down to remember it.  But I guess the flip side of that is I can be humbled now because fuck…I can’t remember anything. Some days even with the ball in my hand, I can’t remember who’s serving.

    What’s the most important lesson you’ve learned so far?

    Oh my god… again it’s going to sound so cliché but, happiness is an inside job. It has nothing to do with your external circumstances. I’ll give you an example, someone came to my house and looked out at my view and said, ‘oh my god you must be the happiest person in the world to be able to look at this every day,’ and I looked at them and went, ‘are you out of your fucking mind?’ because ‘wherever you go, there you are.’  I don’t strive for happiness…happiness is relative and the word is overused.  I strive for peace and contentment, and I recognize that it’s a moment-to-moment thing, and the minute I move past where I’m at, to the future or to the past, I lose the present, and that does me no service, nor is it of service to the people around me.

    The other interesting thing that I’ve learned, and I’m going to try and not come off all Christian when I say this, but so many things in my life I have orchestrated, worked hard towards, and wanted so badly, that achieving the result was all I cared about, with the belief that if I achieved that result I would be happy. Things would be good…I’ll finally have what I wanted.  But the things that have brought me the most joy in my life, were unexpected things that I did not orchestrate.  So, I’m gonna say it two different ways… now, I don’t try to determine how the day will unfold… I let the Holy Spirit do it, or to be more universal, I let the universe decide because to quote the Desiderata, “No doubt the universe is unfolding as it should.”

    Do you have a favourite quote?

    “The great way (life) is not difficult for those who have no preferences.” (Seng-ts’an, the 3rd Chinese patriarch of Zen)

    Or Michael Singer, who I love, his take on it is “Life is not difficult for those who prefer everything.”

    Let things come and let them pass through. It’s resistance, our free will to resist, to hold onto all that stuff, that’s what affects us and causes pain.

    Do you have a favourite word?

    Oh, you know I have a favourite word, ‘Fuck.’  It’s so versatile, it is the most versatile word on the planet, and I like it even more that it’s harsh and it’s disapproved of. 

    Describe your perfect day.

    You know I thought about this, I thought about this long and hard, and I don’t have one, and I’ll tell you why. My mother said something to me years ago and I never really understood, but I do now. She said, ‘I am only as happy as my unhappiest child’ and I thought about that and thought, oh my god, she’s right, and no matter how I try to separate myself from the lives of my children in a ‘they’re on their own journey…it’s not my journey…they need to experience whatever they experience and the universe is there to teach them,’ it’s a lifelong lesson for me.  But if you want to know what I love doing everyday- it’s playing a racquet sport and knitting.  I think for me it’s like working a Rubix cube or something…it’s a puzzle. When I’m playing tennis, every game is fresh and different and challenging. When I’m knitting, I can’t knit the same thing over and over again because I’d be bored out of my mind. I like a challenge, and I like to keep my hands busy. Also, I guess I better say this in case my kids read this, I love spending time with my grandchildren…preferably without their parents around.

    If you could have tea with anyone, real or fictional, dead, or alive, who would it be and what would you talk about?

    That would be Anthony De Mello.  I discovered him in 1992, after he died, in 1987. He wrote a book called Awareness. I had been reading Wayne Dyer, but De Mello took me up to a whole different level.  He was a Jesuit priest who woke up one day and thought, the Catholics don’t have all the answers so he incorporated Hinduism and Buddhism and every other ‘ism’ that you could possibly imagine and was basically the first person who helped me understand that it’s all the same.  All religions, at their core, they’re all the same.  And I read his book a million times and gave it to as many people as I could find.  When my husband, George died, De Mello was instrumental in getting me through it all.  It helped me understand the cosmos on a different level.

    We would talk about how he got to where he is, his whole philosophy of life, death, and everything in between.  Now that he’s dead, I’d ask ‘How’s it going on the other side?’  The book, Awareness was released posthumously, it’s  just snippets from talks that he had, and it gave me a whole new lease on life, a whole new way to experience joy in ways I didn’t understand before and it started me on a journey of self-awareness.  I would love to know how he got there.  Here is an example of a story that he told.  He was a Jesuit and a professor, and he travelled extensively, and he was in a rickshaw somewhere and the guy pulling him had TB and had just pre-sold his soon to be corpse for science, for the sum of 10 dollars American. De Mello wrote that the driver was a happy man, and thought he himself, was miserable, always complaining, and so he asked the man why he was happy, and he said, ‘well, why wouldn’t I be, what’s not to be happy about?’ And for De Mello that was a beginning of understanding.

    Tell me three things that bring you joy.

    My grandbabies, my sports, and my kids. 

    Name a guilty pleasure.

    Guilty…I don’t feel guilty about stuff… ever,  so I can’t really think of one.  Maybe lame TV, I mean I’m watching Agatha Raison right now which is really poorly done but set in the Cotswolds… so I don’t care. I like lame tv and lamer murder mysteries and I mean really lame, like Midsomer Murders lame…because I can knit and not pay attention.

    Do you believe in life after death? What does it look like?

    I certainly do, but not in the way we experience it.   Do I think that the avatar Margo goes on? No.  Do I think the consciousness that is watching Margo as she goes through life, the consciousness that neither lives nor dies, continues…yes I do. When I wake up from a dream sometimes, I really have a hard time trying to figure out whether it was a dream or reality.  Sometimes it feels like real life, starring the Margo avatar, the life that we think of as reality, is actually just another kind of dream.  I believe that when we die, we just wake up and go ‘God, that was a rush, what was that about?’

    I remember watching some three-year old’s get into a fight and I remember them being upset and thinking…that’s just kids.   Well, that’s how a higher consciousness is likely looking at us and thinking oh, that will be over soon, don’t worry about it.  I mean how can you possibly believe and take seriously anything happening on this planet when you know that there are billions of other galaxies and multi verses… and you’re gonna take this seriously, I mean, come on. I always thought if Merle Haggard’s mother died when he was 21 and in prison she would have died thinking she was a failure as a Mom.  Ultimately, he ended up a rich, country western singer. Why worry about kids…you don’t know what their journey is gonna be.

    What does life after death look like…It’s impossible to imagine. When I look up at the stars on a really clear night, I say I’m not even gonna try to figure it out. I have no frame of reference. The Buddhists have a saying, something like ‘when the Sage points to the moon, all the idiot sees is the finger, or something like that.

    What would you like your eulogy to say?

    I don’t want a eulogy at all.  I’m not interested in the traditional experience of death. I am not arrogant enough to think that anything I say or do will matter anymore than it did when my great great great great great grandmother said whatever she said. I mean the framework that humans have established, the goalposts for life… buy a house… go to school… all that stuff is just a concept that we all agreed on.  It’s like money, money is only worth something because we’ve agreed that it does, and assigned it a value, but if money means nothing to me now, then you saying it has value is meaningless to me. 

    I never understood Jesus in the desert, when the devil comes to him and says you can have castles and all the money you want and Jesus goes, ‘yeah, no thanks, I’m good’.  I never understood that.  Now I get it.  Because no matter what you get…a big house…a fancy car…then you’ve gotta work your ass off to keep it and worry that its gonna go away. So instead of it being something to aspire to, it’s a thing that loses its joy.

    One of my favourite quotes from when I was in leadership is, “Of a great leader they will say, we did it ourselves.”  So, if I shaped anybody, or if I influenced anybody, it wasn’t because that was my intention.  If they got something out of anything I ever did, power to them, but that was not my intention.  I’m just doing my dance and if other people benefit by my dance, good for them, even if all they’re saying is ‘I hate that dance.”  I never ever wanted to be a leader, but I certainly was someone who wanted to control things, and those are two very different things. It’s funny, every now and then my kids will say, ‘you were a good mom,’ but ten years ago when they were teenagers, they were saying something else entirely…it’s all relative, and it’s all irrelevant.

  • Death, Dying and other Unmentionables

    With apologies to Edward Gorey (The Gashlycrumb Tinies: Edward Gorey’s Alphabet of Death)

    “Death comes equally to us all, and makes us all equal when it comes” – John Donne

    “Memento Mori” (Remember Death)

    I’m not saying I think about death a lot, but my best friend’s husband has nicknamed me ‘Terminal’ Sylvie.  Perhaps a dozen or so years working as a palliative care nurse has left me marginally more noir than what strict social mores decree, but working adjacent to the dying, holding space for their final insights and experience, and catching glimpses through the eyes of those close to death, is a life-altering awakening. It’s difficult to capture with mere words, but as a little old lady… in waiting, let’s just say I feel a certain readiness to share what I’ve learned from the front row seats, as close as anyone can get without taking to the stage themselves.

    Those near death understand a secret thing that we do not. Once you’ve been assigned an expiration date, you come to fully understand that there is nothing that we can truly own, nothing tangible or material that we can keep, there is no permanence, there is only the love we give away, the investment we make in others, and the ripple effect our actions have, for good or ill, is our only real legacy.  Between you and me, I’m hoping for a bit more time to invest my ‘goodwill’ stock and watch my portfolio grow, but I know that nothing is promised.  I try to stay awake to the end game and challenge myself never to overlook an opportunity for kindness.  My record is sketchy at best, I’m a work in progress, of course, but I caution you now, that treating death as a taboo topic and putting our heads in the sand is ill advised, at best.  A good death takes a little planning, and that starts with one irrefutable truth – that no matter how healthy or fit, rich, or connected (spiritually or otherwise), clever or credentialled you may be…no one is getting out of here alive.

    Let’s start with the easy stuff – a quick review of the logistics.  A few years ago, I attended a national palliative conference in Ottawa. There were a lot of very interesting and learned speakers there, but the lecture that got my complete attention was a presentation entitled ‘Getting ready to go.’  The lecturer provided some significant demographic data that suggested that the death trajectory as we currently know it, complete with nursing home beds, hospice care and access to in-hospital palliative care, may not be available to us.  That is to say, we don’t currently have the capacity to accommodate the glut of Boomers that will die in a very concentrated time period.  There is no more room at the ‘End of Days’ inn.  The lecturer advised looking for community resources as we will almost certainly be dying at home. So have a look around you…know any docs or nurses, maybe have your kids practice injecting an orange or two … just thinking out loud here.

    The lecture also included a detailed inventory of ‘good death’ questions for review.  Do your kids know your passwords? Have you got a will, a DNR, a POA (medical vs financial)? What are your thoughts on MAID?  Does you religion dictate that you suffer before death?  Do you understand that if you lose cognitive capacity, MAID is no longer an option for you? Perhaps better to consider your position sooner rather than later and more important still, to communicate your ‘last orders’ to your substitute decision maker.  You have a substitute decision maker… right? Isn’t it a kinder thing to consider your options now before your children or SDMs have to bear that burden?  As a palliative care nurse, I’m reasonably confident that I can keep you comfortable as you lay dying, but my ability to comfort or mediate the pain and sadness of your friends and families sat beside you, holding vigil through the long days or possibly weeks as you lay dying… I know no medicine strong enough for that.

    It’s important to have a think about what constitutes a meaningful life and what factors detract too much from that ideal to be tolerable for you, individually.  It’s a very personal decision.  If you’re asking me, I’m thinking I could possibly tolerate a little incontinence, I’m already acclimating to the indignities of cognitive decline (the forgotten pickleball scores, the word-finding, and could any of us LOLW get home if we didn’t have our key fobs to find our cars…just today I watched a friend open the door to an SUV that wasn’t hers…pretty funny actually, and tolerable I suppose. I’m going to go on record here and say I could, in theory at least, endure a modicum of pain (reserving the option to change my mind at any time on the pain piece…huge fan of pain management…give me the drugs – all of the drugs). However, if I was confined to hospital with no chance of returning home, or if I developed a dementia that meant I no longer recognized the people I love, then maybe a nice little hospital acquired pneumonia isn’t such a poor prognosis. Maybe comfort measures only at a certain point is the most humane treatment option.

    Talk to your kids or your appointed decision makers about what you want and, more importantly, what you don’t want.  I promise you that if I brought you to work tomorrow, even for an hour or two, you would be on the phone with your loved ones by the end of day. Think about who it is you want standing around your deathbed. Invite them to dinner, open a bottle of wine… maybe three. If possible, wait for the dessert course before you dive in to the deep end…ask about their day, tell them how much they mean to you, and as you cut into the pie, begin the difficult but essential conversation about what a ‘good death’ would look like to you. A mildly uncomfortable dessert course now, will spare your loved ones from having to make unthinkable decisions on your behalf at a time when all they’ll want to do is hold your hand, share a laugh about pie night, and find the strength to say goodbye.

    Now, to the really important bit.  It’s been my experience that those who make a happy end…those who die well, are those who live well, investing themselves in the people around them, and in whom others depend.  The best death scenes I’ve witnessed are alive with love and rife with family folklore, where stories are shared of times well spent, and laughter erupts, and perhaps some tears as loved ones share their memories from over the years.  ‘The day I met your dad…the day you were born…remember that big snowstorm…the camping trip from hell…’ or any number of Christmas poemics.  I remember a famous local watercolourist whose family met in his hospital room every day at 5…Happy hour they called it.  The wine was poured liberally, a hand-picked playlist in the background, the dulcet tones of Vera Lynn, ‘I’ll be seeing you in all the old familiar places…‘, the dying man, the guest of honour, enveloped by his chosen few, every afternoon the same bespoke soundtrack, storytelling and laughter, until the music stopped.

    All we accumulate in this life, the acquisitions… the accolades…. they mean nothing in the end.  It’s more about kindness brewed on darkest nights, and passions discovered and developed in ourselves and encouraged in those around us.  What is most important in the end, are the broken hearts we helped to mend, our fortitude, our dedication, and our prowess as a friend, and all the little beauties we cultivate in whatever sort of garden we decide to tend.  What matters most I think, as you take your last breath, is the love you gave away and the joy you helped create, in the time you were here.  It’s our only job really … to love and be kind, if we can, and I have found that those who die well, with peace and with grace, find the time to be kind despite the many burdens they face… some even in their last hours and days. I will never forget a gentleman who rang his call bell at change of shift, with no ask or agenda, only to serenade his night nurse with the most beautiful rendering of ‘Fly me to the moon’ that I will ever know. I can still hear his voice a decade later, and I pray I’ll find it in myself to sing a little song in my last hours, to know such grace.

    For me death is only a door to an unseen place, a speed bump between this world and what comes next, ‘it is the last unprinted snow‘ (Stoker). I think of it as a final adventure, a quest, a magical mystery tour. I know for many it may seem scary… the travel restrictions are untenable, you travel alone, no company, no carry on.  I think the only thing we get to take are the string of moments when we are fully awake… the Fly me to the Moon occasions of human connection, a cache of all the unspeakable beauty we are capable of conjuring … a steadfast heart, a gentle word, an earnest ear, the softest kiss.  All the love we give away is the only investment we need ever make, and the only prayer we need ever pray.  But if, like me, you’re looking to hedge your bets, to grow a little more in the time you have left, there are three little questions I like to ask now and again: am I honouring my gifts, have I learned to love true, and is the world a slightly better place, even a smidgeon, because there was you? If you can answer these questions with any degree of satisfaction, I can almost promise you a beautiful death, where a parting glass will be raised in your name and those who loved you best will stand together in the “coke machine glow” that was you and mourn the loss of your incandescant light.  In the meantime, dig out your rolling pin…it’s time to make pie.